Tuesday, November 12, 2013

Goofy's evaluation

Goofy's evaluation was wonderful, there was one part I just had to shake my head at- we were sitting in the room, talking, when my husband mentioned my Goofy One's tendency to fall out of chairs. She said that's common with ADHD (it is.) because she's heard of ADHD kids all the time that will just be sitting there, not even moving and next thing they know, they're in the floor. My husband told her that Alex does it too, just out of nowhere, *thump*. She said, yeah, that's probably the ADHD. I'm sorry, I had to laugh. It's common with ADHD (40-60%) and it's common with autism, but it's neither. It has it's own name under Sensory Processing Disorder- Proprioceptive Dysfunction. Proprioception is the ability to sense the position, location, orientation, and movement of the body and its parts. I'll leave it at that so I don't get sidetracked and move on to the evaluation.

I was so nervous, afraid that now that we have a chance to get an answer, the answer would be along the lines of woman, you're crazy. knock that shit off.

Yeah, crazy... LIKE A FOX! hahahaha.

ok, anyway, "crazy" as in "obsessive hoarder of all school papers" did come up but she was very nice about it. Said things like, "wow." (without the doubtful tone and the "um..." that usually follows it) and "very organized." (*snicker*, I'm sure she changed her mind about that once she dug into my binder) She made copies of some of the things I handed her and wanted to look through this year's work on the lunch break, so I'm excited about that. It's looking like she's actually willing to listen and look at everything. I asked her if her evaluation would fit the requirements of an independent evaluation for school. She said the SSD uses their evaluations all the time. Awesome news. I was wondering if, even though I would be getting personal answers, I would be wasting our time as far as getting him help at school.

We go up to the room for the interview that involves all of us and she's asking really great, really detailed questions and she's taking notes on everything. She mentioned a very good point that makes me feel better about Goofy's developmental milestones (sitting, rolling, etc..) I feel horrible because I can't remember any of it. I have no clue what happened when, all I know is that he talked early. She said, "well, did the pediatrician have any concerns? They should have asked at the check-ups what he was doing." Oh, duh! They would have! and there were no concerns. ever. He was a perfectly "normal" baby.

up until Kindergarten. Then she wanted to know what happened in Kindergarten the first time. Calamity. That's what happened the first time in Kindergarten.

Then we moved on to the 2nd kindergarten. all of the evaluations, the come back laters, the results- or lack of results... everything.

She wants to know about now. what my concerns are at home, what my concerns are with school. I remembered. I remembered everything. I divided the question into lists- social, developmental, behavioral, self care, and school. Making lists, I was able to tell her everything. In making the lists, in remembering why I'm looking for answers, I realized, no matter what the results of the evaluation are... I'm not crazy. I am looking at real issues and trying to find help. With my husband chiming in, both of us being on the same page for once, I'm seeing more clearly that I am seeing something. I don't know what it is, but I know it's there.

She gave me two more questionnaires to fill out. The first was a lot easier to fill out because it stated in the directions exactly what each circle meant (always- with no help or reminders, sometimes- partially without help or reminders, never- always needs reminders or help, etc...) and I have to wonder if I ever read the directions on the ones I've filled out in the past. damnit.

By lunch time she decided she would like to talk to the school. She asked me to sign a release giving her permission to talk to his teacher. I signed it. and then I asked for a copy.

She said she can't tell me I'm not crazy without scoring the tests and a lot goes into the scoring. She said she can't even say if there is a possibility of something without scoring the tests. It will take about 2-3 weeks to score them and write up the report, then she will call us in to discuss the results.

I'll still need to get a speech evaluation and an occupational therapy evaluation because she doesn't evaluate those but we are so close. I just know it.

When I got home, I was tired. so freaking tired. my brain was fried and I was ready for the day to be over.

But then...

Alex came home. and in Alex's backpack were the behavior reports from last year (top) and this year (bottom) that I've been waiting for...

(picture's not great, but you get the idea) and now I'm excited. I can't wait for this meeting, it's going to be GREAT! but, that is for another day.


  1. Awesome news! Yesterday, during Joshua's evaluation he got "Proprioceptive Dysfunction" too. I had already told them that I believed he had ADHD, he fits the criteria - he also, falls out of chairs all the time. I am trying to get him evaluated for ADHD we are in several processes here. I wondered if I was "crazy" too, yesterday's eval helped me see that at least I am not crazy in this area. Lol!

    Joshua did not have any of the classic signs of Autism as Daniel did. For years so much of my time was directed on Daniel that I may have missed some things, but I am glad to be getting what he needs now. Always moving forward!

    I am so glad that it went well and I hope everything continues to!

  2. That is really great! I had the exact same problem prior to my kids being diagnosed with Autism. I had actually never been taken seriously until the assessing professionals. I just went and booked them in for an autism diagnosis eventually, got kind of sick of everyone treating me like I was crazy and paranoid.