Saturday, August 17, 2013

The best laid plans... Goofy's School

Somehow, some way, it seems like we (me 'n' the school) got our wires crossed. Really, I don't know how, I thought it was all pretty clear. I asked for an IEP. They said no. I said I'll be back the first report card of next year. They said ok. Pretty straight forward, right? I thought so.

The end of last year, I got a letter that said he would be screened in August for supplemental reading services. I was happy. August is here. It's time for the screening. The counselor called me Tuesday, I guess to set up the team meeting I was asking for. I asked her if it would be a better idea to wait for the reading screening and discuss it all at once. The thought that was a great idea. She said she would find out when it was. I asked her to let me know. She said ok. Pretty straight forward, right? I thought so.

Wednesday... nothing.

Thursday... nothing.

Friday, I e-mailed her asking if she had any news. Hours later, she e-mailed me back...

They will start testing around the middle of next week.  They have to have the results back from everyone before they can make decisions [on] who will qualify.  As soon as I know anything, I will let you know.
"They have to have the results back from everyone before they can make decisions [on] who will qualify."? What does that even mean? Like, some sort of lottery? many will play, few will win? Hell, how 'bout we just play a round of duck, duck, goose!? Whatever, I don't even care. That wasn't even the point in my agreeing to this screening.
I don't give up. I don't give in. I don't back down.  ...
I won't back down, no I won't back down
You could stand me up at the gates of hell
But I won't back down  
Gonna stand my ground, won't be turned around
And I'll keep this world from draggin' me down
Gonna stand my ground and I won't back down
Uh, anyway, this school houses the conference room Alex's IEP meetings were held in. Some of the potential members of my Goofy One's team sat at that very table with me as I ripped apart Alex's IEP, line by line, team member by team member and detailed the many, many ways they each violated it; leaving no team member untouched and nothing any of them could say but "I'm sorry." They know I take my kids- and their education- seriously (which, in hindsight, may have something to do with them not wanting to give my Goofy child an IEP... ) and yet, they think... what? That the possibility of supplemental reading services will satisfy me enough to shut me up? Sorry, but, no. I just want the report. The reading services, while they may be nice, are not even on my radar. That screening is just part of the documentation I need for my formal written request for evaluation.

So, alright, whatever. I e-mail her back. Now, if there is one thing these demon spawns taught me, it's to not give them the opportunity to say no. Be careful how you phrase things and what (*if*) choices you give. I'm not giving choices so I ask her when I will get a copy of that report.

So far, no answer.

My husband tells me to be patient. My husband asks me if I remember what happened last week. I reply, *obscene gesture*. I was patient Wednesday and Thursday. I'm tired of being patient. and, hello, history, remember? This is the same woman who told me dyslexia was not covered by an IEP. yes, it is. Well, not by Missouri law. Yes. It is. So, I printed out the papers that said so. Well, huh, would you look at that... it is. Patience is overrated. Patience is for people who can afford it. and people who don't play dumb when it comes to federal and state law. Patience has no place in the adult portion of special education.

Do you know there are only 41 days until September 27th? True story, I googled it. I have 41 days to get the screening, the report, 2 referrals for medical evaluations and the reports that go with those evaluations because September 27th is the end of the first 6 week grading period. The clock is ticking. I don't have time for games, Goofy can't afford it.

Right now, this plan is all I have
  1. Screening.
  2. Medical Evaluations
  3. Report Card
  4. Formal Written Request for Evaluation
  5. IEP Hell.
I was thinking about asking for help developing a better plan at the team meeting but now I'm wondering if that's such a good idea. Probably not. You don't consult with the opposing team to plan your plays for the game.

 It will work out, I know it will. I will figure it out. I will not stop until he is at grade level in every area... even if that's never. I will research, memorize, fight, plead, rant and rave... whatever I have to do.

But it sure would be nice to not have to.

It would be nice to have some backup. someone to talk it over with. to advise me. I feel so lost and alone right now. I'm unsure. unsettled. I question everything I'm doing, wondering if I'm even on the right track. What if the problem is not based in reading/writing? Where would I even go from there? I've been collecting information for a year now and I don't know that we are any closer to an answer than we were when we found out there was a problem. I feel like I'm missing something and I don't know how to find it. Playing Where's Waldo blindfolded.

I can't stay like this. The insecurity over what I'm doing with the Goofy child is stopping me from jotting down my thoughts on Alex and what is going on with him. I need to get my head on straight.

Bec reminded me- again- that this is a marathon. I need to stop thinking it has to be done right this minute or that we are behind on schedule. The goal is to get him help. There is no time frame. It doesn't have to be the first report card. They know I will be back to request SSD services. I need to wait until I am fully armed before I step onto the battlefield.  There's no point in going in half cocked to fight a losing battle. So, I'm taking this weekend for me.

Yesterday, the girl's other grandma came to get her for the night. I got my calendars straight and took the rest of the day off. Today, I'm not sure. but I'm going to do stuff. non-school stuff. like painting my nails. listening to music. hanging with my brother. reading blogs. clean the house.

Monday morning will come soon enough.

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