Tuesday, July 2, 2013
"10 year old boys who don't walk, use wheelchairs NOT strollers!!"
Get him a custom rigid frame wheelchair from like tilite or something A STROLLER IS THE MOST degrading thing you can have him in, I understand he doesnt want to walk, fine, get him a wheelchair, 10 year old boys who dont walk, use wheelchairs NOT strollers !! a custom rigid frame chair cost just as much as a damn stroller
I am against pushing '' age appropriate'' for the most part, but a person mobility should be appropriate a stroller degrades him and the rest of the autistic / DD community because of the image it forms
GET HIM A WHEELCHAIR !!!
I'm moderately autistic and I'm DD delayed too, and I play toys and stuff too, but I'll be damned if I ride in a stroller and even his peers ( us) cannot socialize with him if he is sitting in a stroller ) he needs peer friends others who are dd / autistic, because we can communicate with each other, we have a language and our own ways and we can connect interact and communicate in many ways ;-)
just get him a wheelchair please
Thank you for being concerned. Thank you for taking an interest in Alex and fighting for his right to dignity. ...but it's not necessary in this case.
One of the things with Medicaid is you don't get much of a choice. You get what you get and you be thankful for it. Also, Medicaid denied anything- wheelchair or stroller- for Alex because what he needs is nothing a commercial stroller (baby stroller) can't do so this one was given to us for free by a dear friend who's son had outgrown it. (seriously, Lady, I can't thank you enough.)
His stroller IS a wheelchair according to the site it's sold on- http://www.convaid.com/metro-special-needs-stroller-metro-transport-stroller-c-1_19_20-l-en.html but from what I understand, the difference between something being called a wheel chair and something being called a stroller is the rigidity/style of the seat and the size of the wheels. If that is the case, a stroller is exactly what he needs.
The Tilite you recommend looks very nice, however, being on the spectrum yourself, I'm sure you understand sensory needs. Alex needs to feel secure, held, safe. He has proprioceptive issues that make even sitting in a kitchen chair uncomfortable. He needs bilateral supports. He needs the high back. he needs fabric that will mold to his body, touching as much as possible to tell him the chair is there. He needs a place to rest his feet to ground him. With motor planning issues, he needs a seatbelt to let him know when to stay seated. and then you have the need to touch spinning objects which would have his fingers exploring the wheels as we roll... you can imagine how that would play out. I don't like holding his hands to keep him from grabbing, that is degrading.
Alex's needs outrank anyone else's opinion.
I don't want to say that Alex is spoiled because he's not bratty in the least little bit but Alex gets what Alex wants. He walks when he wants to walk, he sits when he wants to sit, we roam where he wants to roam and most of the time I am following his lead. We tried the wheel chairs at Wal-Mart and he hated it. He cried every time. He resisted going in, he tried to get out. In his stroller, he is calm. content. He enjoys being free to sit back comfortably and appreciate what is going on around him. If he objected to using the stroller, we would find something he found more suitable... but he doesn't.
Alex isn't interested in interacting with most people, autistic or not. He says hi and you might get a hug but then he wants you to get the hell away from him so he can keep doing what he wants to do. If being in a wheel chair or a stroller makes someone think less of him or not want to interact with him... that's their problem and they aren't worth his time or effort, anyway. Not that he cares. Alex is awesome whether he's sitting or standing and he knows it.
I appreciate your concern and am thankful for the advice but in this, as in most everything, I am following Alex's lead.
Alex's desires outrank anyone else's opinion.
This is his life. He is in control. If I get some flak for that... so be it. If Alex being Alex degrades your entire community... Well, I can't say I'm sorry for that because, as I said, Alex is fucking awesome as he is. I will not change him for you or anyone else.